Help is not coming - ndis denied

[Judymay]

You ever think you maxed out of defeat and the world proves you wrong. There that's my day. I've had bad asthma for a week and due to my immobility it has deteriorated. I can barely breathe and my doctor said today you are at risk for blood clot we need you to go hospital and get checked because we have done everything else. Sadly I only have one support and mum was and is still working so I am home still. And after a brief interaction with her I was told by my doctor you need ndis because this is unsafe and ofcourse my mum got upset Because she thought we were attacking her but we are not we are just realistic of the situation. 

anyone mum made me feel awful and I thought I reached capacity this week so thought well let fate run it's course and then I just my ndis appeal - rejected, and why because the application the hospital did that I can't access was insufficient and doesn't meet criteria- not shocked after the treatment but I thought my added evidence would alter it.

anyway I'm here. This was my last help is coming hope. I have nothing left and my quality of life is far from substantial. I am exhausted and just don't have any fight left. 

im waiting for mum to get home. I won't be telling her about it tonight because she is already heightened and I don't have it in me tonight to regulate us both. I don't know what will happen, if she'll guilt trip to go to the hospital, the place who has generated the hardest suffering of my life. I don't know anymore I have nothing. 

[tyme]

I am so sorry to hear this @Judymay .

What a difficult place to be in. 

Do you have a GP or some health professional you trust?

https://www.ndis.gov.au/applying-access-ndis/how-apply

Would you consider phoning NDIS to get support to fill out your application? "In some areas, we don’t have partners. In non-partner areas we recommend you contact us on 1800 800 110 to be supported to apply to the NDIS."

Please don't give up. I believe in you.

I'm here for you. I wish it could be easier for you.

[Dimity]

Hugs @Judymay . I hope the Dr could ease your asthma even if you couldn't get to hospital for further checks.

That NDIS result defies logic. Is there room for further appeal?

My heart goes out to you and your mum. 

[Alisse]

Hi @Judymay 

This sounds like a lot to deal with when your'e already struggling to breathe. 

I feel, the NDIS application process is overwhelming.

When you are not well and need the support it is just too difficult.  

If you are mentally unstable, it is overwhelming and results in greater distress.

I obtained assistance from Social Futures, in applying for NDIS for my son, but he got rejected.

Iam now obtaining assistance from Mission Australia for the appeal process and hopefully he will be approved. 

There are services out there to assist with the application process and guide you on the requirements for approval. Maybe consider contacting one of them and see if you can have an in person meeting, I found this very helpful, or contact the NDIS directly.

Whatever you decide, don't give up, advocate for yourself and your right to a decent quality of life.

Wishing you a successful approval.

Kindly Lisa

https://socialfutures.org.au/

Mission Australia: Home

Mission Australia

https://www.missionaustralia.com.au

[MJG017]

Hi @Judymay 

I'm sorry it's been such a painful fight for you.  The NDIS sure don't make things easy, and I know i'm putting that very mildly.  I can understand why you'd feel so frustrated and defeated at the moment.  Part of me wonders if that's their intention.

My partner works in the disability (MS) sector and works with quite a few people who have trouble getting approved with the NDIS.  They can seem to use any little thing to reject applicants.  She has found some good success for clients either by having a really good support worker to fight for them, or finding an advocate to do the same.  I'm not sure how much you've tried already, it seems like you've tried everything but I thought I would provide some links she gave me before that may or may not help.

https://www.imha.vic.gov.au/self-advocacy-ndis

https://dacssa.org.au/advocacy/

https://www.neaminational.org.au/services/mental-health-ndis-access-support/